MedHome Portal Site Map

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Contact- email addresses for web master, project director, etc.
Feedback- email form for criticism, suggestions on what wasn't found, what should be next?
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Welcome and brief intro
What's New - listing of recently updated or added sections, articles, resource listings
Upcoming Events - learning collaboratives, meetings, etc.
Conferences and Community Events

What is a Medical Home? & Who are CSHCN
Care Coordination
Optimal Coding
Our Supporters
About our Project and the Portal
Newsletters/Conference Calls - archives of Utah Collaborative Medical Home Project (UCMHP) Newsletters and transcripts of practice support calls, listed by date and topic
Conferences and Community Events
Surveys
Orientation to the Portal

Overviewof Medical Home and the MedHome Portal
Learning About Diagnoses
Impact of a Diagnosis/Disability

Dealing With Your Child's Diagnosis
Siblings of special needs children

Supports for Children with Special Health Care Needs and their Families

Education Supports
Respite Care
Finances
Legal Issues

Managing and Coordinating Care

HIPPA
Utah Care Notebook English and Español
Communication Guide
Health Information Guide
Working with Caregivers in Your Home
Planning for Medical Emergencies

Advocacy
Forms
Terms / Acronyms / Definitions
Resources

Physician's Guide

Information Release Form (.pdf)
Evaluation / Services Recommentation Form (.pdf)

Parent's Guide
Definitions and Terms
Legal and Legislation
FAQ
Forms

Overview
Birth to Three
School Transitions

Transition to Preschool
Kindergarten & Elementary School
Middle School
High School
Utah College Disability Centers
Contributors

Hospital to Community
Transition to Adulthood
Daily Living

Social Issues
Recreation Activities
Travel / Transportation Issues
Education Issues
Employment / Daytime Activities
Independent Living
Sexuality / Reproductive Issues
Spiritual Needs
Self-Advocacy
Guardianship / Estate Planning

Health Care

Finding Adult Health Care
Health Insurance / Financial Aid
Medical Home Top Tens
Genetic Counseling
Handouts, Checklists, and Resources

Contributors

Overview of Technology Reviews
Mobility

Wheelchairs
Wheelchair Fits

Tracheostomy
Gastrostomy

Overview
Links
Services - Community and Professional
Tools For Your Practice
Patient Education
Bibliography and References

Introduction to Screening and Prevention
Developmental Screening
Newborn Screening

Amino Acid Disorders

Argininemia
Argininosuccinic Aciduria
Citrullinemia
Homocystinuria
Maple Syrup Urine Disease
PKU
Tyrosinemia, Type 1

Endocrine Disorders

Congenital Adrenal Hyperplasia
Congenital Hypothyroidism

Fatty Acid Oxidation Disorders

Carnitine Uptake Deficiency
CACT
CPT 1
Glutaric acidemia 2
Isobutyryl Co-A Dehydrogenase Deficiency
LCHAD
MCAD
SCADD
VLCAD

Sickle Cell Disease
Galactosemia
Organic Acidemias

2M3HBA
Beta-Ketothiolase Deficiency
Biotinidase Deficiency
Glutaric Acidemia, Type 1
HMG Lyase Deficiency
Holocarboxylase / Multiple Carboxylase Deficiency
Isovaleric Acidemia
Malonic Aciduria
Methylmalonic Acidemias
Propionic Acidemia
Short / Branched Chain Acyl-CoA Dehydrogenase Deficiency

Infant Social-Emotional Screening
Maternal Depression Screening

Diagnosis Prevalence List
Asthma
Attention Deficit Hyperactivity Disorder
Autism Spectrum Disorder
Cerebral Palsy
Diabetes Mellitus, Type I in Children
Down Syndrome
Duchenne Muschular Dystrophy
Hearing Impairment
Mental Retardation
Neurofibromatosis , Type I
Seizure Disorder
Spinal Cord Injury
Traumatic Brain Injury
and for each Diagnosis Module:
• Description, Prevalence, Authors
• Clinical Assessment
• Treatment
• Related Issues and Problems
• Helpful Articles
• Frequently Asked Questions (by Physicians and Families)
• ICD-9 Coding
• Practice Guidelines
• Tools for Your Practice - Checklists, growth charts, forms, etc.
• Patient Education
• Services
• Links
• Bibliography

link to Disclaimers
link to Policies
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